I started this blog because of a bunch of kids. I was standing up in front of them a few months ago, talking about my job. A job which I no longer have, but that's another story for another time. At some point during the talk, I must have dropped the CF bomb. Telling people you have Cystic Fibrosis goes one of two ways; either the person you're talking to has no idea what it is, or they know someone who has/had it.
The funny thing about this situation however, was that they started asking questions that no one has ever asked me before. Of course I always get, "What's that?"
But this time I got other questions coming at me rapid fire. "How does that affect your job?" "Does it hurt a lot?" "Is it like...cancer?" "Is there a cure?" "Do you hang out with other people who have it?"
I was really surprised, to say the least. Most people ask me one or two questions and then politely avoid the subject. This time though, I had a lot of fun with the no holds barred questions. I ended up answering more about that than my actual job.
It hit me then, that I don't mind talking about it. Actually, I'd like to share my experiences, and see who else has been through it. I'd like to share what it was like growing up with CF and how it is from here on out, with so many changes on the horizon. I want to invite people who don't know what Cystic Fibrosis is into my world and let them experience it through my words. I want anyone who wants to, to ask me any question they have because I want everyone to know what CF is. So this is my Blog, and for the next however long it takes, I'll be sharing my CF stories.
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